The European Echinococcosis Registry (EurEchinoReg) is a collaborative research network focused on tracking and studying echinococcosis, a parasitic disease caused by the Echinococcus genus, particularly E. multilocularis and E. granulosus. This registry collects data on cases across Europe, supporting research into the disease's epidemiology, clinical features, and public health impact.
Surveillance and Data Collection: The registry monitors cases across endemic regions, including parts of France, Switzerland, Germany, and Austria. It aims to track the incidence and distribution of the disease to inform public health strategies.
Research and Collaboration: EurEchinoReg collaborates with other networks like FrancEchino and public health institutions to enhance understanding of the disease's spread, risk factors, and impact on human populations.
Public Health Insights: The registry has noted a rising trend in cases over recent decades, with endemic zones expanding in Europe. This information is vital for guiding prevention strategies and improving diagnosis and treatment protocols.
Human Register
Common clinical and epidemiological questionnaire, in English, German and French
Step by step collection of the data:
from «reference centers», in endemic countries
from primary care physicians (clinical aspects), and patients themselves (epidemiological aspects) if data are missing
from specialists (hepatology, infectious diseases, internal medicine, surgery, radiology) through their national societies
from the dpts of Pathology of major hospitals, and hospital pharmacists (long-term albendazole delivery)
Guidelines for diagnosis (serology, medical imaging), classification (PNM system) and treatment
Animal Epidemiology
"Prevalence" file to collect data when individual records are not accessible
"Individual record" file with precise items
Guidelines about techniques (examination of carnivores, sampling design, list of resource centers and field of expertise)